Ultragenyx Patient Advocacy - Rare and Ultra-Rare Diseases
At Ultragenyx, the patient advocacy team is passionate about educating supporting you patients, families caregivers affected by rare ultra-rare diseases.
OVERVIEW
The site ultrarareadvocacy.com presently has an average traffic classification of zero (the smaller the more traffic). We have examined one page within the web page ultrarareadvocacy.com and found three websites linking to ultrarareadvocacy.com.
Pages Crawled
1Links to this site
3ULTRARAREADVOCACY.COM TRAFFIC
The site ultrarareadvocacy.com is seeing fluctuating quantities of traffic in the past the year.
Date Range
1 week
1 month
3 months
This Year
Last Year
All time
Date Range
All time
This Year
Last Year
Date Range
All time
This Year
Last Year
Last Month
LINKS TO DOMAIN
Neuromuscular Disease Foundation Home
Information, Updates and Studies. Information, Updates and Studies. Give a little to make a big impact. Help make our community a better place. Be where the action is! Check out our calendar for upcoming events. Blog and Photos on NDF Black and White Ball, 2015.
WHAT DOES ULTRARAREADVOCACY.COM LOOK LIKE?
ULTRARAREADVOCACY.COM SERVER
We found that a single root page on ultrarareadvocacy.com took one thousand eight hundred and thirteen milliseconds to download. We could not observe a SSL certificate, so in conclusion we consider ultrarareadvocacy.com not secure.
Load time
1.813 secs
SSL
NOT SECURE
Internet Protocol
104.196.212.178
SERVER OS
We detected that ultrarareadvocacy.com is using the nginx os.HTML TITLE
Ultragenyx Patient Advocacy - Rare and Ultra-Rare DiseasesDESCRIPTION
At Ultragenyx, the patient advocacy team is passionate about educating supporting you patients, families caregivers affected by rare ultra-rare diseases.PARSED CONTENT
The site has the following in the homepage, "Ultragenyx Patient Advocacy - Rare and Ultra-Rare Diseases." We noticed that the web site also stated " A Note from Our CEO." It also stated " Role of Patients in Rare Disease Research. Navigating Adulthood with Rare Disease. A Note from Our CEO. Role of Patients in Rare Disease Research. Navigating Adulthood with Rare Disease. The role of patient advocacy. A personal journey with rare disease. Working with and for you."ANALYZE MORE WEB PAGES
D-I-P-P-I-N-G-I-T - DeviantArt
Deviant since Jun 26, 2014. This is the place where you can personalize your profile! You can drag and drop to rearrange.
FOED3010TechnologyFall2012 - home
Welcome to FOED 3010 Integrating Instructional Technology in the Classroom. A vision of K-12 Students today video and discussion.
AyumaHoutaro - DeviantArt
This is the place where you can personalize your profile! You can drag and drop to rearrange.